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2025 Zellweger UK Family Meet and Conference Cover

2025 Zellweger UK Family Meet and Conference

Zellweger UK Logo

Zellweger UK

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日時

Thu, 17 七月 2025, 4:00 PM onwards

GMT +2.00

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会場の場所

Manor House Hotel

Fowley Cross, EX20 4NA, Okehampton, England, United Kingdom

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このイベントについて

Updates on the latest research in peroxisomal disorders, and a weekend of activities and connection for families affected by the disease.

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Manor House Hotel

Fowley Cross, EX20 4NA, Okehampton, England, United Kingdom

イベント主催者

Zellweger UK Logo

Zellweger UK

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Zellweger UK is a small charity dedicated to supporting research, raising awareness, and helping families affected by Peroxisomal Disorders, including Zellweger Spectrum Disorder, D bifunctional Protein Deficiency and Acyl-CoA Oxidase Deficiency. Run by parents who are either bereaved or caring for affected children, all trustees volunteer their time to ensure funds go directly to families. The charity offers information, emotional support, peer to peer connections, and grants for life-improving equipment. Zellweger UK also supports research aimed at improving diagnostics and finding treatments for these rare, incurable metabolic diseases.

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