LGMD Awareness Foundation

LGMD Awareness Foundation is a 501 (c)(3) advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy (LGMD). In collaboration with other LGMD foundations, our focus is to provide curated educational information and resources for the LGMD community and the general public. By increasing awareness of and advocating for individuals living with LGMD, we hope to assist in advancing the diagnosis, care, and treatment. In addition, we also coordinate a worldwide LGMD Awareness Day which is celebrated annually on Sept. 30th.

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