Las Vegas Rare Disease Celebration

Pearson Community Center

1625 West Carey Avenue, 89032, North Las Vegas, NV, United States

Dreamsickle Kids Foundation

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Gina Glass, the Executive Director and Founder of Dreamsickle Kids Foundation which is the 1st active Sickle Cell Disease nonprofit in Las Vegas. Established in 2018, Dreamsickle Kids Foundation has jump started  Nevada to take an active role in addressing disparities faced by the Sickle Cell population. The mother of two, with her youngest being affected by the genetic disease, the treatment of those with this illness is  very important. Though, unlike many other states, the population in Nevada is much smalle.r Gina , with the founding of Dreamsickle Kids has moved to make the support for this group of individuals just as important as any other cause in the state regardless of the size of those affected. the mission of the organization is to #MakeSickleCellPopular by shedding light on the treatment of people with Sickle Cell Disease not only in healhcare settings, but in the community , from home,school, to work. There is a lack of understanding about the severity of this disease and how its unpredictability can impact those who are affected on many fronts ,physically and mentally. Gina hopes that through the work of the organization , children like her daughter will grow in an environment where they do not have to be ashamed to disclose their illness, or fearful that the medical professionals charged with treating them will have little to no knowledge of  the disease or proper treatment which can prove to be fatal for people with Sickle Cell in Nevada and across the US.