NF Northeast is a highly regarded resource for patients, physicians, and scientists. We have provided over $3 million in research grants and have been pivotal in directing over $600 million towards federally funded NF research through our political advocacy work. We’re known as the “organization with the heart” because our focus is creating a strong, caring community that supports newly diagnosed patients and their families through every step of their journey with NF. We call it their Journey of Hope.